Rubber Band Girl

Rubber Band Girl

A Mother's Memoir

eBook - 2013
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Rubber Band Girl is a heartwarming story of a mother and daughter who never give up on life or on each other. Marfan Syndrome, or "Rubber Band Disease," as it is commonly called, has taken the lives of too many, too soon. A disease that attacks the ligaments of the body, it is associated with heart and vision problems, extreme flexibility of the joints, and, its most noticeable feature, excessive height. In this inspiring memoir, Jennifer Nielson recounts her journey as the mother of Hadley, a beautiful young girl with Marfan Syndrome. Together, they climb the mountains of life-threatening health problems and endless doctor visits. Together, they travel through the deep valleys of sorrow and loss. Together, they successfully manage Marfan's-and forge an unbreakable bond in the process.
Publisher: San Clemente, CA : Sourced Media Books, LLC, [2013]
Copyright Date: ©2013
ISBN: 9781937458614
193745861X
9781461934622
1461934621
Branch Call Number: Internet Access
Characteristics: 1 online resource (134 pages) :,illustrations.

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